Abstract
Dukhanin and colleagues’ taxonomy of metrics for patient engagement at the organizational and system levels has great potential for supporting more careful and useful evaluations of this ever-growing phenomenon. This commentary highlights the central importance to the taxonomy of metrics assessing the extent of meaningful participation in decision-making by patients, consumers and community members; discusses how the purpose of an evaluation and the organizational relationships among key evaluation stakeholders is likely to influence the choice of metrics in important ways; and suggests a recasting of the metrics in the form of a logic model that supports the selection of metrics that are appropriate for a program given its stage of development and the purposes of the study
Highlights
P2C2 repsa who are chosen to, reflect the broader population being served, who are ready to participate and have generally positive attitudes toward
Meetings are regularly held; P2C2 reps are not out-numbered by other participants; reps attend regularly and participate actively
Decision-making process is transparent and trusted; P2C2 reps participate actively; reps participate ; they are treated with respect; they can make decisions independently; they are involved throughout all stages of decision-making, including final decisions; they are asked to evaluate the decision process and can make changes
Summary
Effective recruitment of P2C2 reps using culturally appropriate methods and media. A broad, jargon-free initial assessment of P2C2 needs and strengths is provided to support P2C2 decisionmaking. P2C2 reps have control over various aspects of decision-making including agenda setting; time allocation; having defined roles; involvement since first stage of decision-making; and control over meeting minutes. Meetings are regularly held; P2C2 reps are not out-numbered by other participants; reps attend regularly and participate actively. Healthcare organization supports dissemination of the results of engagement (eg, decisions made). Decision-making process is transparent and trusted; P2C2 reps participate actively; reps . Make decisions independently; they are involved throughout all stages of decision-making, including final decisions; they are asked to evaluate the decision process and can make changes . The healthcare organization assures follow-up of commitments and their translation into action. P2C2 reps are satisfied with the engagement; they experience increases in empowerment vis a vis healthcare and increases in their own trust of the healthcare organization
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