Abstract

Children suffering a serious illness, experience enormous changes in their daily lives. Not only does the direct consequences of the disease affect the child, but also the fact of being at a hospital, or at home and not being allowed to go to school. Frequently, connections with classmates, neighbors, and sometimes even some with his relatives are lost. Furthermore, the responsibility of the state, to continue his schooling process is much harder, since different communities (family, school teachers, hospital teachers, medical doctors, psychologists…) have to be coordinated. Last but not least, entertainment and enjoyment should be provided to avoid boredom and to improve their affective state. At the same time, with the development of Information and Communication Technologies, a large number of solutions have arisen that allow people to enhance their communication, education and entertainment possibilities. These technologies seem perfectly suitable to be used to tackle the problems described above. In this article, some of the special necessities of children suffering from a serious illness are pointed out, technologies available to be facilitated are described and some initiatives taking place in Spain mentioned. The SAVEH project will be described in detail.

Highlights

  • A great change in life happens when anyone is diagnosed a serious illness

  • Do the direct consequences of the disease have an impact on the person, it usually has a negative effect because of the changes in habits and the daily life of the patient

  • Isolation is the fact that makes the lives of these children much harder apart from the direct consequences of the illness

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Summary

Introduction

A great change in life happens when anyone is diagnosed a serious illness. do the direct consequences of the disease have an impact on the person, it usually has a negative effect because of the changes in habits and the daily life of the patient. The situation when the patient is a child or a teenager is even more significantly striking In these periods of life, keeping in touch with family, friends, and classmates is clearly essential for emotional stability. For some time, there have been multiple initiatives with the main objective of trying to mitigate the side-effects of the hospitalization, and the periods of stays at home, allowing children at the same time to continue with the schooling process. Many of these initiatives are mainly focused on using ICTs to improve the services held by the institutions. The technological proposal developed in SAVEH are discussed and conclusions are presented

Related initiatives in Spain
SAVEH Project
ICT for hospitalized children: A SWOT analysis
Proposed Technological Solution
Conclusions

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