Abstract
Intensive interdisciplinary pain treatment (IIPT) involves multiple stakeholders. Mapping the program components to its anticipated outcomes (ie, its theory) can be difficult and requires stakeholder engagement. Evidence is lacking, however, on how best to engage them. Logic analysis, a theory‐based evaluation, that tests the coherence of a program theory using scientific evidence and experiential knowledge may hold some promise. Its use is rare in pediatric pain interventions, and few methodological details are available. This article provides a description of a collaborative logic analysis methodology used to test the theoretical plausibility of an IIPT designed for youth with pain‐related disability. A 3‐step direct logic analysis process was used. A 13‐member expert panel, composed of clinicians, teachers, managers, youth with pain‐related disability, and their parents, were engaged in each step. First, a logic model was constructed through document analysis, expert panel surveys, and focus‐group discussions. Then, a scoping review, focused on pediatric self‐management, building self‐efficacy, and fostering participation, helped create a conceptual framework. An examination of the logic model against the conceptual framework by the expert panel followed, and recommendations were formulated. Overall, the collaborative logic analysis process helped raiseawareness of clinicians’ assumptions about the program causal mechanisms, identified program components most valued by youth and their parents, recognized the program features supported by scientific and experiential knowledge, detected gaps, and highlighted emerging trends. In addition to providing a consumer‐focused program evaluation option, collaborative logic analysis methodology holds promise as a strategy to engage stakeholders and to translate pediatric pain rehabilitation evaluation research knowledge to key stakeholders.
Highlights
Refractory pain affects eight percent of youth and can lead to significant functional disability (Huguet & Miro, 2008; Lewondowski et al, 2013)
Stakeholder engagement is defined as the involvement of individuals without traditional evaluation training and may include parents of youth with a chronic condition or disability, youth themselves, clinicians, or healthcare managers (Camden et al, 2015; Shen et al, 2017)
In an attempt to broaden the application of this evaluation approach in health and rehabilitation programs, this article aims to provide details on the methodology of logic analysis including the mechanisms targeting stakeholder inclusion, the data collected, and the analyses used
Summary
Refractory pain affects eight percent of youth and can lead to significant functional disability (Huguet & Miro, 2008; Lewondowski et al, 2013). Treatment activities are focused on self-management, whereby youth and their parents actively engaged in managing pain, using adaptive coping strategies, while returning to participating in age-appropriate activities (Stahlschmidt, Zernikow, Wager, 2016). As children with chronic pain use and often continue to use health and rehabilitation more than their peers, their active participation in program and service evaluation should be a requirement (Moreau & Cousins, 2014). To date, their engagement has been limited (Moreau & Cousins, 2011, 2014)
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