Uses of science communication and lived experience in intersex advocacy in Australia and New Zealand

Abstract

AbstractThis study analyses science communication in intersex advocacy, with a focus on the Australian and New Zealand context. The collective lived experience of intersex advocates creates a body of knowledge, which informs their evidence‐based activism. This research uses publicly available documents published by intersex advocacy groups and semi‐structured interviews with intersex advocates to determine their approaches to communication and the engagement strategies they use. The analysis shows that lived experience can be a compelling and convincing tool for science communication and advocacy; however, it can take an emotional and mental toll on advocates.