Abstract

BackgroundEvidence to Decision (EtD) frameworks bring clarity, structure and transparency to health care decision making. The interactive Evidence to Decision (iEtD) tool, developed in the context of the DECIDE project and published by Epistemonikos, is a stand-alone online solution for producing and using EtD frameworks. Since its development, little is known about how organizations have been using the iEtD tool and what characterizes users’ experiences with it. This missing information is necessary for any teams planning future developments of the iEtD tool.MethodsThis study aimed to describe users’ experiences with the iEtD and identify main barriers and facilitators related to use. We contacted all users registered in the iEtD via email and invited people who identified themselves as having used the solution to a semi-structured interview. Audio recordings were transcribed, and one researcher conducted a directed content analysis of the interviews guided by a user experience framework. Two researchers checked the content independently for accuracy.ResultsOut of 860 people contacted, 81 people replied to our introductory email (response rate 9.4%). Twenty of these had used the tool in a real scenario and were invited to an interview. We interviewed all eight users that accepted this invitation (from six countries, four continents). ‘Guideline development’ was the iEtD use scenario they most commonly identified. Most participants reported an overall positive experience, without major difficulties navigating or using the different sections. They reported having used most of the EtD framework criteria. Participants reported tailoring their frameworks, for instance by adding or deleting criteria, translating to another language, or rewording headings. Several people preferred to produce a Word version rather than working online, due to the burden of completing the framework, or lack of experience with the tool. Some reported difficulties working with the exportable formats, as they needed considerable editing.ConclusionA very limited number of guideline developers have used the iEtD tool published by Epistemonikos since its development. Although users’ general experiences are positive, our work has identified some aspects of the tool that need improvement. Our findings could be also applied to development or improvement of other solutions for producing or using EtD frameworks.

Highlights

  • Evidence to Decision (EtD) frameworks bring clarity, structure and transparency to health care decision making

  • The research team was made up of members of the DECIDE project [11] that were involved in the development of both the interactive Evidence to Decision (iEtD) and the GRADE-EtD frameworks (GR, PAC, JM, SR)

  • In addition to the preexisting knowledge about the iEtD, we judged the research methods in this study to be fit for purpose as they are systematically developed methods previously used in other studies, including the development of the EtD frameworks [7, 16,17,18]

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Summary

Introduction

Evidence to Decision (EtD) frameworks bring clarity, structure and transparency to health care decision making. Since its develop‐ ment, little is known about how organizations have been using the iEtD tool and what characterizes users’ experi‐ ences with it. This missing information is necessary for any teams planning future developments of the iEtD tool. A systematic approach that helps decision making groups consider all the relevant factors can facilitate a more structured and explicit process [3]; a framework documenting this process can render the decisions and underlying considerations more transparent and useful for their target audiences

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