Abstract

BackgroundTechnological tools such as Web-based social networks, telemedicine, apps, or wearable devices are becoming more widespread in health care like elsewhere. Although patients are the main users, for example, to monitor symptoms and clinical parameters or to communicate with the doctor, their perspective is seldom analyzed, and to the best of our knowledge, no one has focused on the patients’ health care advocacy associations’ point of view.ObjectiveThe objective of this study was to assess patients’ health care advocacy associations’ opinions about the use, usefulness, obstacles, negative aspects, and impact of health apps and wearable devices through a Web-based survey.MethodsWe conducted a Web-based survey through SurveyMonkey over nearly 3 months. Participants were contacted via an email explaining the aims of the survey and providing a link to complete the Web-based questionnaire. All the 20 items were mandatory, and the anonymized data were collected automatically into a database. Only fully completed questionnaires were considered for analysis.ResultsWe contacted 1998 patients’ health care advocacy associations; a total of 258 questionnaires were received back (response rate 12.91%), and 227 of the received questionnaires were fully completed (completion rate 88.0%). Informative apps, hospital apps for viewing medical reports or booking visits, and those for monitoring physical activity are the most used. They are considered especially useful to improve patients’ engagement and compliance with treatment. Wearable devices to check physical activity and glycemia are the most widespread considering, again, their benefits in increasing patients’ involvement and treatment compliance. For health apps and wearable devices, the main obstacles to their use are personal and technical reasons; the risk of overmedicalization is considered the most negative aspect of their constant use, while privacy and confidentiality of data are not rated a limitation. No statistical difference was found on stratifying the answers by responders’ technological level (P=.30), age (P=.10), and the composition of the association’s advisory board (P=.15).ConclusionsAccording to responders, health apps and wearable devices are sufficiently known and used and are considered potential supports for greater involvement in health management. However, there are still obstacles to their adoption, and the developers need to work to make them more accessible and more useful. The involvement of patients and their associations in planning services and products based on these technologies (as well as others) would be desirable to overcome these barriers and boost awareness about privacy and the confidentiality of data.

Highlights

  • Connectivity, and availability of the internet have boosted the development of mobile apps and wearable devices in the last decade

  • According to the 227 participants, Web-based social networks were used for health communication, promotion, or grouping patients with a specific disease, and telemedicine had a great impact on health care out of all technological innovations, with 183 (80.6%) responders and 178 (78.4%) of preferences, respectively; these were followed by wearable devices, such as smart-watches or wristbands, and health apps, with 148 (65.2%) and 146 (64.3%) responders, respectively

  • This study offers an exclusive view of patients’ health care advocacy associations’ opinions about eHealth technological tools that have not yet been well explored

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Summary

Introduction

Connectivity, and availability of the internet have boosted the development of mobile apps and wearable devices in the last decade Those for health and care focus mainly on the management of chronic conditions such as diabetes [1], cardiovascular diseases [2], and specific populations or conditions [3,4]. In the past year alone, health apps have grown by nearly 78,000 units, reaching a total of 325,000 registered [7] Despite their spread, the use of these new technologies arouses discussions about the collection and sharing of data, focused on their protection, privacy, accuracy, and reliability [8,9]. Patients are the main users, for example, to monitor symptoms and clinical parameters or to communicate with the doctor, their perspective is seldom analyzed, and to the best of our knowledge, no one has focused on the patients’ health care advocacy associations’ point of view

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