Abstract

BackgroundPatients on hemodialysis receive dialysis thrice weekly for about 4 hours per session. Intradialytic hypotension (IDH)—low blood pressure during hemodialysis—is a serious but common complication of hemodialysis. Although patients on dialysis already participate in their care, activating patients toward IDH prevention may reduce their risk of IDH. Interactive, technology-based interventions hold promise as a platform for patient activation. However, little is known about the usability challenges that patients undergoing hemodialysis may face when using tablet-based informatics interventions, especially while dialyzing.ObjectiveThis study aims to test the usability of a patient-facing, tablet-based intervention that includes theory-informed educational modules and motivational interviewing–based mentoring from patient peers via videoconferencing.MethodsWe conducted a cross-sectional, mixed methods usability evaluation of the tablet-based intervention by using think-aloud methods, field notes, and structured observations. These qualitative data were evaluated by trained researchers using a structured data collection instrument to capture objective observational data. We calculated descriptive statistics for the quantitative data and conducted inductive content analysis using the qualitative data.ResultsFindings from 14 patients cluster around general constraints such as the use of one arm, dexterity issues, impaired vision, and lack of experience with touch screen devices. Our task-by-task usability results showed that specific sections with the greatest difficulty for users were logging into the intervention (difficulty score: 2.08), interacting with the quizzes (difficulty score: 1.92), goal setting (difficulty score: 2.28), and entering and exiting videoconference rooms (difficulty score: 2.07) that are used to engage with peers during motivational interviewing sessions.ConclusionsIn this paper, we present implications for designing informatics interventions for patients on dialysis and detail resulting changes to be implemented in the next version of this intervention. We frame these implications first through the context of the role the patients’ physical body plays when interacting with the intervention and then through the digital considerations for software and interface interaction.

Highlights

  • Chronic kidney disease (CKD) is the ninth leading cause of death in the United States [1,2]

  • In this paper, we present implications for designing informatics interventions for patients on dialysis and detail resulting changes to be implemented in the version of this intervention

  • This study evaluated the usability of a digital intervention to engage patients on dialysis that is intended to reduce the patient’s risk of Intradialytic hypotension (IDH) when dialyzing

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Summary

Introduction

Chronic kidney disease (CKD) is the ninth leading cause of death in the United States [1,2]. The most advanced stage of CKD is end-stage renal disease (ESRD) wherein dialysis or transplantation is required for survival. Hemodialysis is a demanding activity for patients, with a frequency of three times a week and each session lasting approximately 4 hours. The stability of these sessions varies, but an average of 20% of all hemodialysis sessions become unstable, most commonly due to intradialytic hypotension (IDH). IDH presents serious risks to patients undergoing hemodialysis, modifying patient behavior may prevent its occurrence. Patients on dialysis already participate in their care, activating patients toward IDH prevention may reduce their risk of IDH. Little is known about the usability challenges that patients undergoing hemodialysis may face when using tablet-based informatics interventions, especially while dialyzing

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