Abstract

BackgroundAs most chemotherapy is administered in the outpatient setting, patients are required to manage related side effects at home without direct support from health professionals. The Advanced Symptom Management System (ASyMS) has been developed to facilitate the remote monitoring and management of chemotherapy-related toxicity in patients with cancer, using patient-reported outcomes questionnaires and a clinician alerting system.ObjectiveThis study aims to evaluate the usability of the ASyMS, a mobile phone–based technology, from the perspective of Canadian patients with cancer receiving chemotherapy to identify existing design, functionality, and usability issues and elicit their views, experiences, and satisfaction with the ASyMS.MethodsWe used a mixed-method approach to data collection with user-based testing, a think-aloud technique, semistructured interviews, and short answer questionnaires with a purposive sample of 10 patients with cancer. Participants attended usability testing sessions at the Centre for Global eHealth Innovation, University Health Network, and performed specific tasks on the ASyMS device. The test was videorecorded and each task was timed during the test. After the usability sessions, participants completed a posttest questionnaire and participated in a semistructured qualitative interview. A thematic analysis was used to code and categorize the identified issues into themes that summarized the type and frequency of occurrence.ResultsThe thematic analysis generated 3 overarching themes as follows: ASyMS user-friendliness; usefulness of ASyMS (content quality and richness); and intention to use. Results from the posttest questionnaire indicated that 80% (8/10) of participants had great motivation to use the ASyMS, 70% (7/10) had positive perceptions of the successful use of the ASyMS, and all (10/10, 100%) had a positive attitude toward using the ASyMS in the future. Most identified design and functionality issues were related to the navigation of the ASyMS device and a desire for a more attractive design with advanced functionality and features. The main general design recommendations were as follows: enhance the readability of the screen; implement advance options (eg, search option); and support better navigation.ConclusionsThe ASyMS has shown positive perceptions of patients in usability testing and qualitative interviews. An evaluation of the effects of the ASyMS on symptom outcomes in a clinical trial is needed.

Highlights

  • BackgroundSystematic chemotherapy continues to be the main treatment modality for almost all major cancer types [1]

  • The increased number of mobile phone users creates opportunities for developing models of supportive care that use these technologies for monitoring patient-reported outcome measures (PROMs) to improve home-based, proactive “real-time” symptom monitoring and management [6,7,8]

  • Several Web-enabled PROMs systems have been trialed in oncological settings [4,8,9,10] and shown to support patients in managing chemotherapy-related symptoms [3,11], improve symptom control [11,12], and enhance patient-clinician communication [4]

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Summary

Introduction

BackgroundSystematic chemotherapy continues to be the main treatment modality for almost all major cancer types [1]. There is growing evidence in support of using patient-reported outcome measures (PROMs) for improving symptom management [3,4,5]. Several Web-enabled PROMs systems have been trialed in oncological settings [4,8,9,10] and shown to support patients in managing chemotherapy-related symptoms [3,11], improve symptom control [11,12], and enhance patient-clinician communication [4]. The Advanced Symptom Management System (ASyMS) has been developed to facilitate the remote monitoring and management of chemotherapy-related toxicity in patients with cancer, using patient-reported outcomes questionnaires and a clinician alerting system

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