Abstract
Urgent Appeal From Hospice Nurses for Pediatric Palliative Care Training and Community
Highlights
During a time when families are stressed and looking for guidance, hospice nurses report feeling uncomfortable, unprepared, and sometimes unwilling to care for children, describing the lack of education, training, knowledge, tools, and resources they have that would benefit the patient and family
Many infants and children die in the hospital, are never referred for services, or are cared for by health care professionals who do not feel skilled in discussing the unique aspects and benefits of pediatric hospice care
Some children live in areas where there are few or no hospices that will accommodate pediatric patients
Summary
During a time when families are stressed and looking for guidance, hospice nurses report feeling uncomfortable, unprepared, and sometimes unwilling to care for children, describing the lack of education, training, knowledge, tools, and resources they have that would benefit the patient and family. Hospice Nurses’ Appeal for Pediatric Palliative Care Training 90% of nurses reported no training in PPC or hospice care.
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