Abstract

Understanding the experience of depression in people living with HIV/AIDS (PLWH) could aid in the detection and treatment of the disorder. Yet, there is limited knowledge of the subjective experience of depression amongst PLWH in low- and middle-income countries despite high rates of this disorder in this population. In the current study, semi-structured interviews were conducted with depressed adults living with HIV attending a primary infectious disease clinic in South Africa. Interview transcripts were thematically analyzed. The construct of depression was consistent with DSM-IV criteria; however, the symptom presentation was distinctive. Somatic symptoms were most prominent in participants' initial presentations because participants perceived them as medically relevant. Affective, cognitive, and behavioral symptoms were not readily reported as participants did not perceive these symptoms as pertinent to their medical treatment. We identified several idioms of distress that could assist in screening for depression in this population. A valid, contextually developed screener for depression in PLWH awaits further investigation. Such a measure could play a key role in formulating a logistically feasible method of detection and treatment for depression in this population.

Highlights

  • Studies of people living with HIV (PLWH) have documented elevated rates of depression (e.g., Sivasubramanian et al, 2011)

  • Among PLWH, depression has been linked to suboptimal adherence to antiretroviral therapy (ART) regimens (DiMatteo, Lepper, & Croghan, 2000), which has been associated with accelerated disease progression (Leserman et al, 2002)

  • The symptoms of depression reported by participants were consistent with DSM-IV criteria

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Summary

Introduction

Studies of people living with HIV (PLWH) have documented elevated rates of depression (e.g., Sivasubramanian et al, 2011). In South Africa, 41% of a sample of 900 PLWH reported mild to major depression (Freeman, Nkomo, Kafaar, & Kelly, 2008), indicating that as many as 3.8 million people in South Africa may suffer from this double-disease burden. Major depressive disorder (MDD) may often go undetected among PLWH due to lack of awareness among patients (Van Dyk & Nefale, 2005) and health-care workers (Mall, Sorsdahl, Swartz, & Joska, 2012).

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