Understanding the determinants of consent for linkage of administrative health data with a longitudinal survey

Abstract

The Survey of Families, Income and Employment (SoFIE) is a panel income study with a health component, including data linkage to national health databases. This paper investigates factors that predict consent to data linkage. SoFIE participants were asked permission to link their SoFIE records to administrative health data in Wave 3 of data collection. Logistic regression was used to investigate the association of sociodemographic variables with consent to record linkage. Of Wave 3 participants 79.4% consented to health record linkage. Taking into account prior attrition, consent and matching the overall participation rate was 60.9%. Participants reporting Māori, Pacific and Asian ethnicity had lower odds of consenting. There was a strong relationship between the presence of co-morbid disease and consent to linkage. This study has shown that consent to link health information to survey records was high and the survey provides a rich and unique dataset for longitudinal analyses.