Understanding Experiences of Chronic Illness from the Patient Perspective

Abstract

OPEN ACCESSFebruary 3, 2014Understanding Experiences of Chronic Illness from the Patient Perspective Cinthia De La Rosa, MPH, Rainer Soriano, Valerie Parkas, Neloofar Naderi Cinthia De La Rosa, MPH Icahn School of Medicine at Mount Sinai Google Scholar More articles by this author , Rainer Soriano Icahn School of Medicine at Mount Sinai Google Scholar More articles by this author , Valerie Parkas Icahn School of Medicine at Mount Sinai Google Scholar More articles by this author , Neloofar Naderi Icahn School of Medicine at Mount Sinai Google Scholar More articles by this author https://doi.org/10.15766/mep_2374-8265.9688 SectionsAbout ToolsDownload Citations ShareFacebookTwitterEmail AbstractThis resource documents the longitudinal clinical experience (LCE) introduced at the Icahn School of Medicine. This longitudinal program allows the students to further understand the experience of illness from the patients' perspective, learn from the clinician's approach in caring for patients with chronic illnesses, and identify methods to navigate the healthcare system in caring for chronically ill patients.The LCE program partners a patient cared for by an Icahn School of Medicine faculty member with two first-year medical students. The students establish a long-term relationship with the patient and the physician over the length of the course. Students observe first-hand challenges faced by patients living with chronic illnesses, how their chronic medical conditions impact their quality of life, and the coping mechanisms they have developed to live with the challenges their chronic illnesses pose. During their time with the patient, students reflect on the patient's experience through a series of written assignments related to the patient's life history, medication management and reconciliation, and their own reflection. They also can select from a list of additional reflection assignments as they relate to the patient. Topics for these additional reflections include: behavior modification, health insurance, health literacy, advance care planning, home environment assessment, nutrition assessment, and social determinants of health.When asked to reflect on this experience, some students disclosed a nonexistent, minimal, or unclear relationship mainly due to limited contact with care team and unfamiliarity of patients' needs. However, many students had positive encounters and established meaningful relationships with their LCE patient and felt their patient was trustworthy, respectful and welcoming. Educational Objectives By the end of this session, learners will be able to: Understand the patient experience of illness and the patient's interaction with the healthcare system over time.Engage in team-based care of patients with chronic illness.Participate in active learning through collaboration, experience, and reflection.Begin to develop a professional identity. Sign up for the latest publications from MedEdPORTAL Add your email below FILES INCLUDEDReferencesRelatedDetails FILES INCLUDED Included in this publication: LCE Facilitator Manual.doc Life History Assignment.doc Behavioral Modification Assignment.doc Health Insurance Assignment.doc Health Literacy Assignment.doc Advance Care Planning Assignment.doc Home Environmental Assessment Assignment.doc Nutrition Assignment.doc Social Determinants of Health Assignment.doc Medication Management and Reconciliation Assignment.doc Reflection on Experience Assignment.doc To view all publication components, extract (i.e., unzip) them from the downloaded .zip file. Download editor’s noteThis publication may contain technology or a display format that is no longer in use. CitationDe La Rosa C, Soriano R, Parkas V, Naderi N. Understanding Experiences of Chronic Illness from the Patient Perspective. MedEdPORTAL. 2014;10:9688. https://doi.org/10.15766/mep_2374-8265.9688 Copyright & Permissions© 2014 De La Rosa et al. This is an open-access article distributed under the terms of the Creative Commons Attribution license.KeywordsLife HistoryActive LearningPatient-CenterednessExperienceClinical ReasoningLongitudinal StudiesPatient-Centered CareProblem-Based LearningClinicalChronic DiseaseChronic IllnessPatient-Centered Approach Disclosures None to report. Funding/Support None to report. Loading ...