Abstract

Background: Some people choose to plan ahead for their future health and social care so that their views, preferences and wishes are known and recorded. This process is known as Advance Care Planning (ACP), or Anticipatory Care Planning in Scotland. ACP is a voluntary process that can help people to understand their options and make others, including healthcare professionals, aware of their wishes. There is an emerging evidence base that ACP can have many benefits for people with a terminal diagnosis and the wider system. Ethnographic methods were used to gain an understanding of how people with a terminal cancer diagnosis experience end of life communications and decision making. Revealing Reality was commissioned to undertake this research.

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