Understanding advance care planning in care homes throughout the COVID-19 pandemic: A critical realist review and synthesis

Abstract

Background: The COVID-19 pandemic has disrupted advance care planning discussions in care homes, particularly discussions involving relatives and surrogate decision makers. There is a need to collate and examine current evidence to assess the extent of the problem. Aim: To examine the processes and experiences involved in advance care planning in care homes throughout the COVID-19 pandemic. Design: A critical realist review and synthesis. Data Sources: MEDLINE, psycINFO, SCOPUS and CINAHL were searched between December 2019 and May 2022. Results: Eleven studies were included. Communication difficulties associated with remote technologies meant that care home staff’s concerns about engaging effectively with relatives further exacerbated the emotional toll of dealing with high death rates in circumstances where staff shortages stretched the capacity of those remaining to provide timely advance care planning discussions. The threat of the pandemic tended to encourage earlier and more frequent advance care planning discussions, though this tendency was partially countervailed by the difficulties that some residents and relatives had in engaging with remote communication modes. There was evidence that education and training in advance care planning increased staff’s confidence and readiness to engage in care planning during pandemic conditions. Conclusion: Results highlight part of the new context facing staff, relatives and residents in care homes, thus providing valuable insight for future intervention development required to maintain and improve the effectiveness of advance care planning in care homes during and beyond the pandemic.