Abstract

BackgroundTo be diagnosed with type 2 diabetes is a challenge for every patient. There are previous studies on patients’ experience in general but not addressing the increased cardiovascular risk and multifactorial treatment. The aim of this study was to explore the thoughts, experiences and reactions of newly diagnosed patients with diabetes to this diagnosis and to the risk of developing complications.MethodsTen adults (7 men/3 women, aged 50–79) diagnosed with type 2 diabetes within the last 12 months were interviewed at a primary health care center in Sweden. An interview guide was used in the semi-structured interviews that were transcribed verbatim. The analysis was qualitative and inspired by systematic text condensation (Malterud). The text was read several times and meaning units were identified. Related meaning units were sorted into codes and related codes into categories during several meetings between the authors. Finally, the categories were merged and formed themes.ResultsWe defined three main themes: Reaction to diagnosis, Life changes and Concerns about the future. Most patients reacted to the diagnosis without intensive feelings. Lifestyle changes were mainly accepted but hard to achieve. The patients’ major concerns for the future were the consequences for daily life (being able to drive and read) and concerns for relatives rather than anxieties regarding medical issues such as laboratory tests. There were considerable differences in how much patients wanted to know about their future risks.ConclusionsThe results of this study might help to focus doctor-patient communication on issues highlighted by the patients and on the importance of individualizing information and recommendations for each patient.

Highlights

  • To be diagnosed with type 2 diabetes is a challenge for every patient

  • Diabetes confers an elevated risk of cardiovascular complications or premature death compared to the background population [3]

  • Participants We interviewed adults first diagnosed as having type 2 diabetes mellitus within the last 12 months

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Summary

Introduction

To be diagnosed with type 2 diabetes is a challenge for every patient. The aim of this study was to explore the thoughts, experiences and reactions of newly diagnosed patients with diabetes to this diagnosis and to the risk of developing complications. In Sweden, patients with type 2 diabetes mellitus are usually taken care of at the primary healthcare centers (PHCCs) [7]. The PHCCs are responsible for a certain number of listed patients. Both General Practitioners (GPs), mostly specialists in family medicine, and diabetes specialist nurses meet the diabetes patients. In Sweden, a patient with diabetes with no complications or changes of medication, visits the practice twice a year for check-ups, which means meeting the GP once a year and meeting the nurse once a year on a routine basis.

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