Treatment and Care for Children with Very Severe Mental and Physical Disability

Abstract

We present two cases of severely disabled children who required tracheotomy and ventilatory management under long-term care at home. Both cases were infants who had survived life-threatening crises during the perinatal period and infancy. Even if their conditions have stabilized, they are always at risk of sudden changes. There are several preconditions for the long-term survival of such children, in which family plays a considerable part. Medical personnel should provide the best supportive care in both acute and chronic phases.