Abstract

Contemporary disease self-management programs aim to renegotiate the terms on which patients participate in their own health care. Though the notion of ‘patient 2.0’ has mainly been used to speak to patient empowerment through IT, we therefore propose to view self-management as eliciting “the patient” in a different shape. In this paper, we explore the embedded assumptions, imagined potentials and concrete practices of the Stanford Chronic Disease Self-Management Program (CDSMP), in order to understand how this program reconfigures a particular form of global patient. To analyse this process we consider the CDSMP as a traveling technology. First, we demonstrate that its successful globalization has been enabled by tying together specific forms of theorizing, evidence-basing, and scripting in a theory-methods package. Second, we show that the globalization of the program entails various forms of localization in the national health care setting of Denmark. In this context, we examine different kinds of efforts required to maintain the ‘global’ identity of the program even as it is ‘localized’. In particular, we show that the insertion of the program into Danish health care generates frictions. Such frictions are brought to light comparatively as Danish health care policy-makers, practitioners, consultants and chronic patients engage with and reflect upon the characteristics of the program. We argue that this analysis holds implications for ‘patient 2.0’, both as practical accomplishment and as a conceptual tool for social studies of medicine and health care.

Highlights

  • New Forms of Global Patients?The current global focus on patient involvement is often described as a response to the fact that health strategies have failed to recognize how people can play a positive part in building healthy lives

  • We ask these questions with reference to the Stanford Chronic Disease SelfManagement Program (CDSMP), which is concerned with the social and mental aspects of living with a chronic disease

  • We show that the insertion of the program into Danish health care generates frictions

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Summary

Introduction

Our starting point is that in disease selfmanagement programs, patients, too, come face to face with new roles and expectations Such programs, too, aim to reconfigure the terms of patient participation and create new forms of empowerment. The individual patient but the health care system at large benefits when patients are trained in disease self-management Such programs are said to empower individual patients to interact pro-actively and competently with health care systems. Such questions are crucial to address in order to understand the consequences of these programs, both for health care systems and for (new kinds of ) patients We ask these questions with reference to the Stanford Chronic Disease SelfManagement Program (CDSMP), which is concerned with the social and mental aspects of living with a chronic disease. We end with a discussion of the implications of the analysis for an understanding of patient 2.0 as practical accomplishment and as a conceptual tool for social studies of medicine and health care

Methods and Empirical
A Matter of Control
Full Text
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