Abstract

Traumatic brain injury (TBI) is an increasingly major world health problem. This short review using the most pertinent articles on TBI caregiving problems and needs highlights the pressing issues. Articles focusing on both TBI-caregivers' problems and needs are rarely found, especially for developing countries. Most TBI-caregiving is done by family members, whose altered lives portend burden and stresses which add to the overwhelming demand of caring for the TBI-survivor. Lack of information, financial inadequacy, anxiety, distress, coping deficits, poor adaptability, inadequate knowledge and skills, and a poor support system comprise the major problems. Dysfunctional communication between caregivers and care-receivers has been little researched. The major needs are focused on health and rehabilitation information, financial advice and assistance, emotional and social support, and positive psychological encouragement. In time, health information needs may be met, but not emotional support. Information on TBI caregiving problems and unmet needs is critical to all relevant healthcare stakeholders.

Highlights

  • Traumatic brain injury (TBI) is an increasingly major health problem worldwide

  • Most TBI patients rely on their families to provide care and support, the emerging roles of care-receiving and caregiving respectively

  • Caregivers may not understand the rationale of treatments, caring strategies, and possible behaviour changes of TBI-patient

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Summary

Introduction

Traumatic brain injury (TBI) is an increasingly major health problem worldwide. It is widely acknowledged that TBI has substantial impacts on both patients and their families. Most TBI patients rely on their families to provide care and support, the emerging roles of care-receiving and caregiving respectively. Caregivers may not understand the rationale of treatments, caring strategies, and possible behaviour changes of TBI-patient. Lack of specific information about TBI especially on financial and resources planning, and on optimal caring for the care-receivers and caregivers, contributed to family psychological distress.[3] Usually the caring component includes rehabilitation strategies and practice.

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