Abstract

BackgroundAfter having sustained a traumatic brain injury (TBI), individuals are at risk of functional impairments in information processing, abstract reasoning, executive functioning, attention, and memory. This affects different aspects of communicative functioning. Specific strategies can be adopted to improve the provision of health information to individuals with TBI, including the development of written materials and nonwritten media.ObjectiveA user-centered design was adopted to codevelop four audiovisual presentations, a double-sided information sheet, and a checklist aimed at informing individuals about post-TBI sexuality. The last phase of the project was the assessment of the user experience of the information toolkit, based on the User Experience Honeycomb model.MethodsOverall, two small group discussions and one individual semistructured interview were conducted with individuals with moderate to severe TBI.ResultsThe participants mentioned that the toolkit was easily usable and would have fulfilled a need for information on post-TBI sexuality during or after rehabilitation. They mostly agreed that the minimalist visual content was well-organized, attractive, and relevant. The information was easily located, the tools were accessible in terms of reading and visibility, and the content was also considered credible.ConclusionsAspects such as usability, usefulness, desirability, accessibility, credibility, and findability of information were viewed positively by the participants. Further piloting of the toolkit is recommended to explore its effects on the awareness of the potential sexual repercussions of TBI in individuals and partners.

Highlights

  • 69 million individuals globally are victims of a traumatic brain injury (TBI) each year [1]

  • The participants mentioned that the toolkit was usable and would have fulfilled a need for information on post-TBI sexuality during or after rehabilitation

  • After having sustained a TBI, individuals are at risk of functional impairments in information processing, abstract reasoning, executive functioning, attention, and memory, which affect different aspects of communicative functioning [2]

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Summary

Introduction

69 million individuals globally are victims of a traumatic brain injury (TBI) each year [1]. After having sustained a TBI, individuals are at risk of functional impairments in information processing, abstract reasoning, executive functioning, attention, and memory, which affect different aspects of communicative functioning [2]. This means, for example, individuals can struggle with focusing on an individual line of text, or with understanding the content of written and verbal messages These difficulties can involve low, trauma-related health literacy after hospital discharge, which implies that the individuals do not have the necessary capacity to seek, process, and understand the health information that would help them make informed decisions concerning the medical treatment they receive or their health situation [5,6]. After having sustained a traumatic brain injury (TBI), individuals are at risk of functional impairments in information processing, abstract reasoning, executive functioning, attention, and memory. This affects different aspects of communicative functioning. Specific strategies can be adopted to improve the provision of health information to individuals with TBI, including the development of written materials and nonwritten media

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