Abstract

The Palliative Care Self-Efficacy Scale (PCSE) is a valid instrument in English for assessing healthcare professionals’ self-efficacy in providing palliative care; it has not been translated into Swedish. The aim of this study was to describe the translation, cultural adaptation, and content-validation process of the PCSE scale. In this study, forward and backward translations, pretesting including an expert panel (n = 7), and cognitive interviewing with possible healthcare professionals (physicians, nurses, and assistant nurses) (n = 10) were performed. Experts in palliative care rated items on a Likert scale based on their understandability, clarity, sensitivity, and relevance. The item-level content validity index (I-CVI) and modified kappa statistics were calculated. Healthcare professionals were interviewed using the think-aloud method. The translation and validation process resulted in the final version of the PCSE scale. The average I-CVI for sensitivity was evaluated and approved. Most of the items were approved for clarity, some items lacked understandability, but a majority of the items were considered relevant. The healthcare professionals agreed that the items in the questionnaire evoked emotions, but were relevant for healthcare professionals. Thus, the Palliative Care Self-Efficacy scale is relevant for assessing healthcare professionals’ self-efficacy in palliative care in a Swedish care context. Further research using psychometric tests is required.

Highlights

  • Palliative care can be complicated and challenging for healthcare professionals (HCPs) [1].The coronavirus (COVID-19) pandemic in 2019 highlighted the need for increasing the knowledge of palliative care in residential care homes [2,3]

  • A study conducted in different settings showed that factors associated with high self-efficacy in HCPs were the setting, age, gender, formal palliative care training, and knowledge of palliative care [5]

  • We developed the first Swedish version of the Palliative Care Self-Efficacy Scale (PCSE) scale by following the World Health Organization (WHO’s) translation process with experts and HCPs [11]

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Summary

Introduction

Palliative care can be complicated and challenging for healthcare professionals (HCPs) [1].The coronavirus (COVID-19) pandemic in 2019 highlighted the need for increasing the knowledge of palliative care in residential care homes [2,3]. Palliative care can be complicated and challenging for healthcare professionals (HCPs) [1]. All HCPs should be educated and trained in palliative care to ensure appropriate symptom management [4]. A study conducted in different settings (nursing homes, mental health facilities, and care homes) showed that factors associated with high self-efficacy in HCPs were the setting, age (older), gender (female), formal palliative care training, and knowledge of palliative care [5]. Knowledge of palliative care and self-efficacy can be relevant measures for education and palliative care intervention as they can influence caretaking and personal behavioral change [1]. If HCPs believe that they can provide palliative care and improve a patient’s quality of life, they will be more likely to deliver palliative care to the patient [6]

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