Abstract
Study designKnowledge translation (KT) study.ObjectivesTo demonstrate how to use systematic, community-engaged methods to (1) translate the international scientific spinal cord injury (SCI) exercise guidelines into community and clinical practice guidelines, and (2) develop supporting resources.SettingCanada.MethodsAn expert panel of SCI researchers and stakeholders translated the guidelines and developed a supporting resource, using a KT process guided by an adapted version of the Appraisal of Guidelines, Research and Evaluation (AGREE) II Instrument. Pilot tests with end-users were conducted throughout.ResultsThe panel recommended (1) the two scientific exercise guidelines be combined and presented in a single message titled “The Canadian SCI physical activity guidelines”; (2) development of an online supporting resource, with educational and motivational information presented in “layers” to address the needs and preferences of diverse end-users. The top layer presents and explains the Canadian SCI physical activity guidelines. The deeper layers include information on benefits, overcoming barriers, activity examples, safety tips, and links to existing resources. Interviews with adults with SCI (n = 8) and survey-data from end-users (n = 90) showed that the guidelines and supporting resource were perceived as clear, useful, and appropriate.ConclusionUsing community-engaged methods, the two scientific SCI exercise guidelines were combined into one single physical activity guideline message. This KT process provides a template for groups in other countries to translate the scientific SCI exercise guidelines to their local settings using a similar systematic, community-engaged approach.SponsorshipRick Hansen Institute; Social Sciences and Humanities Research Council of Canada.
Highlights
ObjectivesTo demonstrate how to use systematic, community-engaged methods to (1) translate the international scientific spinal cord injury (SCI) exercise guidelines into community and clinical practice guidelines, and (2) develop supporting resources
A fundamental barrier to physical activity (PA) for people with spinal cord injury (SCI) is a lack of knowledge and resources about the amount and type of activity needed to achieve health and fitness benefits [1,2,3]
Two panel members (KMG, first author (FH)) worked with a graphic designer to draft the first version of the Spinal Cord Injury Physical Activity Guidelines (SCI PAG)
Summary
To demonstrate how to use systematic, community-engaged methods to (1) translate the international scientific spinal cord injury (SCI) exercise guidelines into community and clinical practice guidelines, and (2) develop supporting resources. The expert panel consisted of SCI researchers, adults with SCI, a clinician, a KT specialist, and representatives of SCI community organizations. Panel members attended a 1day consensus meeting, reviewed drafts of the guidelines and the supporting resource, and provided several rounds of feedback. To ensure the guidelines and resource would be relevant to individuals with SCI who do not use wheelchairs, an additional focus group discussion was conducted to identify resource preferences and views of this group. Stakeholder engagement processes resulted in feedback from nearly 100 adults with SCI and other endusers (e.g., healthcare and fitness professionals, community organizations) (Fig. 1)
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