Transition of young people with disability

Abstract

Abstract Transition from child-centred to adult-oriented health services occurs at a time when young people are going through adolescence, with all the excitement and uncertainty that accompanies it. Most elements of good transitional care for young people with disabilities are the same as those for all young people with long term conditions. The article discusses ‘Developmentally Appropriate Healthcare’, the NICE guidance on transition, and the implications of the NIHR funded Research Programme on Transition, 2012–2017. However, additional consideration should be given to those with: • physical impairments such as cerebral palsy • mental health problems, including autism spectrum disorder, attention deficit disorder with hyperactivity or severe learning difficulties • isolated sensory impairments • very complex needs, requiring multi-sectoral packages of care It is crucial to aim to retain the engagement of a young person, even if he or she may not always attach to their healthcare the importance their clinician's think they should. Three key practical points are: • For child services: prepare properly young people from age 12 for transfer so that it is regarded as an exciting part of growing up, rather than a cliff from which to fall • For adult and child services: keep parents involved in a manner that suits both young person and parent • For adult and child services: ensure the young person and parents can meet the adult team at least once before transfer