Abstract

In this article, I bring to the foreground the enactment of the logic of choice and focus on what happens when people are denied the interventions they choose. The specific interventions I focus on are home modifications. My aim is to show how people living with a chronic illness or disability interact with the logic of choice. Drawing from a narrative study on experiences of living with motor neurone disease, I present the narrative of one woman as she tries to enact a life that she can describe as good, or be er. Using empirical evidence, I explore some of the links between subjectivity and the logic of choice, focusing on the experiential knowledge that guides decision-making. In this article, I illustrate how people living with a chronic condition can enact subjectivity by choosing interventions that can a end to their social world.

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