Towards meaningful participation in humanitarian studies: co-researching with persons with disabilities in Central Sulawesi

Abstract

PurposeThis paper presents the experience of co-researching with persons with disabilities in Water, Sanitation and Hygiene (WASH) humanitarian programming using participatory methods that enable empowerment.Design/methodology/approachThis paper focuses on methods that ensure the active participation of persons with disabilities as co-researchers. These methods include building the capacity of persons with disabilities on the research topic and instruments, pre-interview role-plays, field pilot testing, post-data collection debriefing and reflective learning through writing learning diaries.FindingsThis research shows that persons with disabilities have the drive and capacity to contribute to research. Methods such as continuous engagement, capacity building and feedback mechanisms are essential for their participation and influence in the research production process. These methods can provide empowering experiences for persons with disabilities. However, they are often time-consuming and can be convoluted.Originality/valueResearch conducted with persons with disabilities in disaster and humanitarian studies is still scarce. Consequently, resources on inclusive and participatory methodology involving persons with disabilities are minimal. Therefore, this article contributes to addressing this knowledge gap.