Toward the conceptualization and measurement of caregiver burden among Pueblo Indian family caregivers.

Abstract

The purpose of this study was to evaluate burden experienced by a group of American Indian primary family caregivers and to determine if caregiver burden is a multi-dimensional concept. This analysis is based on the results of a survey questionnaire administered to 169 Pueblo primary family caregivers in New Mexico. Analysis of the items composing the Caregiver Burden scale indicated that caregiver burden is multidimensional and consists of several types of burden. Caregiver burden, as identified in this sample, is composed of four dimensions: role conflict, negative feelings, lack of caregiver efficacy, and guilt. Investigations of caregiver burden should consider the multidimensionality of this experience and evaluate burden accordingly. By identifying the specific type of burden that a caregiver experiences, interventions can be targeted more accurately to support family caregiving.