Abstract
An ethnographic study explored ideas about the possibility of creating social support networks for breast cancer within the Portuguese-speaking community in Toronto (Canada). Nineteen men and women from Angolan, Brazilian and Portuguese communities informed about a social support network with a focus on enabling versus challenging conditions for its construction. The fundamental components in creating social support networks were: the demystification of breast cancer and its prevention, emphasis on health education, mobilizing volunteers and direct social support to women living with breast cancer. The potential enabling factors were the participation of older women as social leaders, and the utilization of schools and religious institutions. Perceived barriers were: breast cancer believed to be women’s disease, lack of knowledge about its cure/ rehabilitation, as well as a limited sensitivity to cancer. Social support networks should consider the communities’ diverse cultural and tangible needs, as well as more informal social support services.
Highlights
An ethnographic study explored ideas about the possibility of creating social support networks for breast cancer within the Portuguesespeaking community in Toronto (Canada)
Portuguese communities informed about a social support network with a focus
direct social support to women living with breast cancer
Summary
Potencial da comunidade lusófona de Toronto para a criação de uma rede de apoio social para o câncer de mama*. Estudo etnográfico que explorou ideias sobre a possibilidade de criação de redes sociais de apoio para o câncer de mama na comunidade lusófona em Toronto, (Canadá). Dezenove homens e mulheres das comunidades angolana, brasileira e portuguesa discutiram sobre a criação de uma rede de apoio social com foco em condições facilitadoras e dificultadoras para seu estabelecimento. Os componentes fundamentais para essa criação foram: a desmistificação do câncer de mama e sua prevenção, ênfase na educação em saúde, mobilização de voluntários e apoio social direto às mulheres que vivem com câncer de mama. As barreiras percebidas foram: a crença de que câncer de mama é uma doença feminina, falta de conhecimento sobre sua cura/reabilitação, como também uma sensibilidade limitada ao câncer. Descritores: Apoio Social; Capital Social; Emigrantes e Imigrantes; Neoplasias Mamárias; Pesquisa Qualitativa
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