Abstract
This commentary outlines challenges with identifying and implementing ethical, legal and societal considerations when initiating large-scale scientific programs and suggests best practices to ensure responsible research.
Highlights
U nderstanding and measuring the impact of decisions in research, or the implementation of a research project and new technologies is not straightforward
LifeTime aims to do this by integrating single-cell multiomics, patient-derived organoids and machine learning to transform the precision of health care at a sustainable, patient-relevant scale (Rajewsky et al, 2020)
We describe our experience in setting up an Ethics & Society pipeline in a large biomedical research consortium
Summary
Maria-Elena Torres-Padilla et al ethicists to ethics teams working alongside or embedded within research teams (Sugarman & Bredenoord, 2020; Even Chorev & Testa, 2020). Ethicists identify and evaluate the ethical challenges associated with a novel biomedical technology in parallel or even proactively as the field progresses—rather than once the technology is fully developed The advantage of this ethics parallel method is that it promotes ethical reflection and guideline making from the beginning. During the preparatory phase of LifeTime, we became increasingly aware that conducting research to fulfil such objectives would prompt ethical and societal implications To identify such possible implications, we organized the “LifeTime Ethics Workshop” at the Helmholtz Centre Munich in July 2019, with a broad panel of specialists acknowledged below. Through this discussion we aimed to shed light on whether and how to implement structures and set up specific committees in order to identify ethical challenges and achieve best practices. We discuss below a few specific points that can be taken into practice when designing a new research consortium of this calibre
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