Theoretical care model for children with congenital Zika virus syndrome in the family context.

Gracimary Alves Teixeira,Bertha Cruz Enders,Aylla Nauana Da Silva,Elisângela Franco De Oliveira Cavalcante,Marcela Paulino Moreira Da Silva,Larissa Soares Mariz Vilar De Miranda

doi:10.1590/1518-8345.4057.3458

Abstract

Objective:to develop a theoretical model about the care of children with Congenital Zika Virus Syndrome in the family context.Method:the Straussian Grounded Theory and the theoretical/philosophical framework of Callista Roy and Leonardo Boff were used. It was carried out in northeastern Brazil, with 19 participants, in four sample groups. The data were collected and analyzed simultaneously, using the constant comparison method.Results:the theoretical model comprising the mother’s care for the child with Congenital Zika Virus Syndrome in the family context is formed by five categories: revealing family care, centered on the mother, to the child with the syndrome; identifying the maternal bond that determines the care for children with the syndrome in the family context; identifying the factors that hinder the mother’s care for the child with the syndrome; recognizing the evolution of the child with the syndrome in the face of early stimulation care; and recognizing harms due to the absence of early stimulus to children with the syndrome.Conclusion:the phenomenon runs through the care of the child with Congenital Zika Virus Syndrome, in the family context and centered on the mother, and is faced with the need for shared responsibility among the family members.

Highlights

In 2015, an abnormal increase in children with microcephaly associated with the Zika virus recently arrived in Brazil began in the country[1,2,3]
Is a congenital anomaly in which the Cephalic Perimeter (CP) of the child born at term is equal to or less than 32 cm[4]
Congenital Zika Virus Syndrome (CZVS) is a congenital anomaly associated with Zika virus infection, characterized by intracranial calcifications; decreased brain volume; severe brain abnormalities; ocular and auditory anomalies; delay in cognitive, motor and speech development; cerebral palsy; epilepsy; dysphagia; irritability, that is, the syndrome can manifest itself through a wide range of abnormalities, in addition to the reduced head circumference[6,7,8]

Summary

Introduction

In 2015, an abnormal increase in children with microcephaly associated with the Zika virus recently arrived in Brazil began in the country[1,2,3]. CZVS is a congenital anomaly associated with Zika virus infection, characterized by intracranial calcifications; decreased brain volume; severe brain abnormalities; ocular and auditory anomalies; delay in cognitive, motor and speech development; cerebral palsy; epilepsy; dysphagia; irritability, that is, the syndrome can manifest itself through a wide range of abnormalities, in addition to the reduced head circumference[6,7,8]. It is a complex anomaly with a marked impact on the child’s health and growth and development, family life and health services, due to the complexity of care that the condition demands. Uncertainties about functional limitations, future implications and demands for care to come, still under study[9]

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Conclusion