Abstract

Youth today face novel mental health challenges compared to youth of previous generations. Youth voice in research is necessary to better understand and alleviate this national youth mental health crisis, but current U.S. nationally representative datasets on youth mental health lack youth voice in their survey designs. The academic team collaborated with 19 high school students to design a comprehensive youth mental health survey called the Youth Collaborative Mental Health Survey (YCMHS). The youth co-investigators represented the diversity of San Antonio, Texas, and were majority Hispanic. The constructivism pedagogy in education, which empowers youth voice in the learning process, was utilized to facilitate the youth-led creation of the YCMHS. During eight 2-hour meetings, the youth co-investigators designed the YCMHS with 20 domains and 195 questions. The YCMHS embraced respondent flexibility and voice and included 42 conditional response questions and 29 free-text response questions. The youth co-investigators led the survey administration at five schools during the 2020–2021 school year. The youth-led research design also strengthened collaboration between community and school partners. Takeaways from the academic team include the importance of being flexible and patient and advocating for the youth collaborators. Takeaways from the youth co-investigators include the importance of being open-minded, asking honest questions related to youth mental health, and being persistent. Future work will strengthen the scientific rigor of the YCMHS and highlight preliminary survey results.

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