The workplace perspective on supporting family caregivers at end of life: evaluating a new Canadian social program

Abstract

There is a growing realization that employers need to accommodate the issue of work-life balance for employees who are also providing care for family members or friends in palliative or end-of-life situations, as this phenomenon is only expected to increase within developed nations in the future given demographic trends and health care restructuring. This research aims to uncover the expectations that Canadian employers/human resources (HR) professionals have of the Compassionate Care Benefit (CCB), in addition to their experienced realities of having staff utilize this social program. The CCB provides employed family/informal caregivers with a job-secured work leave and six weeks of employment insurance benefits while they take time off to provide care to a dying family member or close other, often at home (in the community). Five focused discussions were implemented with employers/HR across Canada. Using thematic analysis, the data reveal how well (or not) the CCB meets caregivers' needs, as well as the informational and procedural needs of workplaces. In light of these findings, suggestions for program improvement, with respect to the CCB, are made in order to advocate for continued support of family/informal caregivers whose voices are rarely heard.