Abstract

Objective. The purpose of this review of the literature was to summarise studies regarding the psychosocial impact of growing up with a sibling with autism and to identify gaps in the related literature. Methods. Electronic databases were reviewed in order to critically appraise the 14 articles relevant to the topic. The search included a combination of the following key words: autism∗, quality of life, well-being, sibling∗, ASD, ASD sibling∗, family, adjust∗, psychological functioning. Results. The majority of studies involved mixed children and adolescent samples, leading to confounding results and an inability to draw accurate conclusions about these distinct life stages. Autism appears to contribute to unique environmental stressors for the typically developing sibling. When experienced in the context of additional demographic risk factors, these stressors can result in difficulties adjusting to the demands of a special-needs child. Despite some vulnerability to behavioural and emotional dysfunction in at-risk children, siblings have the potential to not only adjust but to thrive in the face of disability adversity. Conclusion. Growing up with a sibling with autism appears to manifest in both positive and negative outcomes for siblings, depending upon important demographical, family, and individual variables.

Highlights

  • The sibling bond is the marathon runner of human relationships; it is the longest lasting relationship, enduring from the birth of the youngest sibling to the death of the first to go

  • The nurture side of the debate, is lacking considerable focus. How are these siblings and families impacted by the disorder in regard to their quality of life (QoL) and psychosocial outcomes?

  • It is recognised that genetic factors play an integral part in any research regarding autism spectrum disorder (ASD), the current paper focuses on psychosocial rather than biological components of sibling outcome

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Summary

Introduction

The sibling bond is the marathon runner of human relationships; it is the longest lasting relationship, enduring from the birth of the youngest sibling to the death of the first to go. It has been established that the younger siblings of individuals with autism spectrum disorder (ASD) are at heightened risk of developmental problems in comparison to the general population. Some of these developmental difficulties include: social and cognitive deficiencies [1], and neurocognitive and behavioural delays, executive function and repetitive behaviours [2]. The nurture side of the debate, is lacking considerable focus. How are these siblings and families impacted by the disorder in regard to their quality of life (QoL) and psychosocial outcomes?

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