Abstract

A Review of: Giannopoulos, E., Snow, M., Manley, M., McEwan, K., Stechkevich, A., Giuliani, M. E., & Papadakos, J. (2021). Identifying gaps in consumer health library collections: A retrospective review. Journal of the Medical Library Association: JMLA, 109(4), 656–666. https://doi.org/10.5195/jmla.2021.895 Abstract Objective – The objective of this study was to determine if search request forms, which are used when a patron’s request for information cannot be fulfilled at the time of contact with the library team, can be used to identify gaps in consumer health library collections while offering some explanation for the gaps. Design – Retrospective case study of search request forms. Setting – A consumer health library at an academic cancer center in Canada. Subjects – Library patrons: Patients, Patient family, other members of the center, and unspecified. Methods – The researchers reviewed 260 search request forms submitted between 2013 and 2020. Of those, 249 records met inclusion criteria and were analyzed and coded. Coding included patron type, cancer diagnosis, information delivery, and content themes. This information was then used to identify gaps in the library collection and the reasons for the gaps. Main Results – Patients were the primary patrons, asking 62.9% of the questions, followed by family members at 22.5%. The most common cancer type researched was breast at 23.3%, then hematology at 16.5%. gynecology, gastrointestinal, genitourinary, and sarcoma were next between 10% and 8.4%. The remaining cancer types ranged between 6.0 % and 2.0%, with brain being the lowest. Of the questions asked, 60% revealed a gap in the collection. The gaps included rare cancer diagnosis, treatment options, and prognosis. There were data collected on why the information was unavailable. While 53% of the gaps were a result of limited health consumer information, 25% were a result of paywall restrictions or content restricted to members. Conclusion – Search request forms can be an effective tool in evaluating gaps in collections. In this study, the researchers were able to identify that breast cancer patients made up the most significant proportion of patrons, and the biggest gaps in the collection were related to their treatment decisions. One opportunity to bridge this gap is through collaboration with clinical teams in developing patient friendly resources on this topic. In addition, inter-institutional collaboration between libraries may also help. Continued review of forms can help inform collection decisions to better meet the needs of patrons.

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