The Struggle Between Protecting Children From and Preparing Them for the Death of Their Parent: A Qualitative Study.

Abstract

The aim of this study was to gain a greater understanding of communicating with children about parental terminal illness from the perspective of the surviving parents. A qualitative descriptive study was conducted using semi structured interviews with eligible participants. Data was analyzed using thematic analysis. The results highlight the pressures experienced by surviving parents, grappling with trying to support their children's needs on a practical and emotional level, while coping with the emotional upheaval of the impending death of their partner. The issue of communication with the children starts long before the terminal phase of illness and the results confirm that this is an ongoing process that continues after the death of the parent. The need for services to be more responsive to the diverse needs of families was also apparent as a key factor in supporting families during this time. This research provides valuable insights into the complexity of communicating with children about terminal illness from the perspective of the surviving parents. It reveals diverse views and experiences in terms of approaching communication with children and illustrates the need for services to be acutely attuned to the unique needs of parents and children throughout the disease trajectory.