Abstract
Each year in the United States, approximately 50,000 children die, while a half million youth cope with life-threatening conditions.1 Childhood chronic and/or terminal illness impacts the way families function and the mental health and overall well-being of each family member, from patient to sibling to parent. The experience can result in underrecognized and often unacknowledged caregiver burnout entailing physical, emotional, and mental exhaustion. This can lead some parental attitudes to shift; formerly positive and engaged caregivers may grow pessimistic and detached, leading to disruptions in family structure and cohesion.
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