Abstract

The recent focus on rural–urban cancer disparities in the United States (U.S.) requires a comprehensive understanding of the processes and relations that influence cancer care seeking and decision making. This is of particular importance for Black, Latino, and Native populations living in rural areas in the U.S., who remain marginalized in health care spaces. In this article, we describe the household production of health approach (HHPH) as a contextually-sensitive approach to examining health care seeking and treatment decisions and actions. The HHPH approach is based on several decades of research and grounded in anthropological theory on the household, gender, and therapy management. This approach directs analytical attention to how time, money, and social resources are secured and allocated within the household, sometimes in highly unequal ways that reflect and refract broader social structures. To demonstrate the benefits of such an approach to the study of cancer in rural populations in the U.S., we take lessons from our extensive HHPH research in Zambia. Using a case study of a rural household, in which household members had to seek care in a distant urban hospital, we map out what we call a rural HHPH approach to bring into focus the relations, negotiations, and interactions that are central to individual and familial health care seeking behaviors and clinical treatment particular to rural regions. Our aim is to show how such an approach might offer alternative interpretations of existing rural cancer research in the U.S. and also present new avenues for questions and for developing interventions that are more sensitive to people’s realities.

Highlights

  • Just before the start of the rainy season in 2017, brothers Paul and Makunka and their mother, Theresa, should have been preparing their land in Luapula Province, Zambia for planting

  • The above case, despite being from Zambia, touches on issues that run throughout rural cancer disparities research in the U.S including distance and transportation to specialty care [1,2,3], late diagnosis and treatment [2,4], financial strain [2,5], family caregiving [6,7], and time spent in or adjacent to an urban hospital [8]

  • Gender and generation are at the heart of decisions about who goes to the hospital and who stays home, and who does what during hospital stays [29]

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Summary

Introduction

Just before the start of the rainy season in 2017, brothers Paul and Makunka and their mother, Theresa, should have been preparing their land in Luapula Province, Zambia for planting. The above case, despite being from Zambia, touches on issues that run throughout rural cancer disparities research in the U.S including distance and transportation to specialty care [1,2,3], late diagnosis and treatment [2,4], financial strain [2,5], family caregiving [6,7], and time spent in or adjacent to an urban hospital (e.g., in Hope Lodge or other lodging for cancer patients and caregivers) [8].

Toward a Rural HHPH Approach to Hospital Care
Rural Households in Urban Hospitals
Gender and Generation in Rural HHPH
Therapy Management across Rural and Urban Locales
Conclusions
Findings
Post Script
Full Text
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