Abstract
Patient and public involvement (PPI) is a process whereby patients, caregivers, service users and other relevant stakeholders, including the general public, are actively involved and engaged in activities to develop research. The dental research agenda has traditionally been driven by clinicians, where patients and the public have participated in research as subjects; patient and public involvement can contribute to the research agenda including the design and conduct of research by providing unique perspectives gained through lived experience. This panel of the 8th World Workshop on Oral Health and Diseases in AIDS considered the role of people living with HIV (PLHIV) to contribute to oral health and HIV research and policy through a process of involvement and empowerment. The panel introduced the concepts of PPI, described the purpose of PPI, reflected upon the logistic and ethical considerations thereof and considered how PPI had been utilised effectively in HIV research and policy change. The audience discussion focused on ways in which PPI could more readily and consistently be encouraged within oral health research involving PLHIV.
Highlights
Author Affiliations1. Vaishali Sharma Mahendra , Consultant, Gender, Sexuality and HIV, New Delhi, India 2
The dental research agenda has traditionally been driven by clinicians, where patients and the public have only participated in research as subjects
The research paradigm in healthcare has been shifting toward the inclusion of patients and the public in the development and conduct of research; this is evident in the field of HIV research where advocates for people living with HIV (PLHIV) have been recognised as an asset in the HIV/AIDS response for more than two decades (UNAIDS, 1999)
Summary
1. Vaishali Sharma Mahendra , Consultant, Gender, Sexuality and HIV, New Delhi, India 2. Ms Anandi Yuvaraj, Consultant-HIV, SRHR and Gender, Coimbatore, Tamilnadu, India 4. 5. Aditia Taslim – Executive Director, Rumah Cemara, Bali 6. Janine Doughty – NIHR Doctoral Research Felllow, University College London
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