The quality of life in children with nephrotic syndrome at Prof I.G.N.G Ngoerah Hospital, Denpasar, Bali

Abstract

Introduction: Nephrotic syndrome (NS) is a common chronic renal disease in children. For chronic illness, the patients requested regular hospital visits and required long term use of steroids or immunosuppressive agents. Besides agents needing therapy, the patients also face the probability of recurrent disease, multiple complications, hospitalization, side effect of treatment and fall into chronic renal disease. The impact could be physical or psychological (emotional, social, school performance). Thus, in this article, we provide the quality of life (QoL) evaluation among children with NS in Prof Dr. I.G.N.G. Ngoerah Hospital, Denpasar, Bali. Methods: This cross-sectional study was conducted at Prof. Dr. I.G.N.G. Ngoerah Hospital, Denpasar, Bali. The cases included 60 children with NS aged 2–18 years diagnosed as NS based on the medical record and attended a pediatric nephrology clinic from January 2022 until July 2022. The patient’s quality of life was assessed using the Pediatric Quality of Life Inventory (PedsQL) generated from 4.0. All the data were analyzed descriptively by using SPSS version 25. The data will be provided in the table. Result: There were sixty children as study subjects, consisting of 36 (60%) male and 24 (40%) female. The Male gender was more dominant in this study (60% of study subjects). Female patients, lower-income families, duration of illness less than 1 year, group B NS (SRNS, steroid dependence NS), and children not in remission phase and on cyclophosphamide therapy demonstrate a higher proportion of QoL disturbance. Conclusion: According to this study, we can conclude that most of the NS patients have not disturbed QoL based on the child and the parents’ reports.