Abstract
Introduction: Self-management (SM) interventions are complex interventions and one of the main components of high-quality chronic disease care for which the incorporation of the perspectives of patients and their informal caregivers is crucial. We aim to identify, appraise and synthesise the evidence exploring patients’ and caregivers’ perspectives on SM interventions. More precisely, we aim to 1) describe how they value the importance of outcomes of SM interventions, and 2) identify the factors that might impact on acceptability and feasibility of SM interventions based on their preferences and experiences. Methods and analysis: We will conduct four mixed-methods overviews as part of COMPAR-EU, a European Union (EU) funded project aimed to identify the most effective and cost-effective SM interventions for chronic obstructive pulmonary disease (COPD), heart failure (HF), obesity, and type 2 diabetes mellitus (T2DM). We will search in MEDLINE, CINAHL, and PsycINFO for systematic reviews of studies addressing patients’ preferences on outcomes, or their experiences with SM alongside their disease trajectory or with SM interventions, published in English. Selection of studies and data extraction will be conducted in pairs. We will assess the overlap of studies and methodological quality. We will follow a three-step synthesis process: 1) narrative synthesis for quantitative evidence, 2) thematic synthesis for qualitative evidence, and 3) integration of findings in the interpretation phase. Additionally, we will consult on the relevance of findings with patients and their caregivers. Systematic review registration: PROSPERO CRD42019117867
Highlights
Self-management (SM) interventions are complex interventions and one of the main components of high-quality chronic disease care for which the incorporation of the perspectives of patients and their informal caregivers is crucial
This study protocol is part of a large multi-method and multi-step project: “Comparing the cost-effectiveness of self-management interventions in four high priority chronic diseases in Europe: COMPAR-EU”. This is a European Union-funded project aiming to identify the most effective and cost-effective SM interventions for patients living with chronic obstructive pulmonary disease (COPD), heart failure (HF), obesity or type 2 diabetes mellitus (T2DM)
To be eligible for inclusion, the systematic review (SR) should report as a minimum: 1) the search strategy for at least one database; 2) the list of included studies; and 3) the methods applied for synthesis[36]
Summary
Self-management (SM) interventions are complex interventions and one of the main components of high-quality chronic disease care for which the incorporation of the perspectives of patients and their informal caregivers is crucial. Self-management (SM) interventions are critical components of high-quality patient-centred care in chronic conditions[1,2,3]. SM can be defined as what individuals, families, and communities do to promote, maintain, or restore health and to cope with the disease or disability with or without the support of health professionals. It includes, but is not limited to, self-prevention, self-diagnosis, self-medication, and daily management of the disease and its disabilities[4]. Different outcomes can be defined to measure their impact based on the specific scope (e.g. behavioural, psychosocial, physiological, or utilisation outcomes) of the intervention[5,6]
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