The perspective of spirituality of patients with new hematological cancer and their families. An exploratory qualitative study

Abstract

For patients with newly diagnosed hematological cancer spirituality constitutes an important aspect. Spirituality refers to a person's attachment to what inspires and grounds him/her as well as to associated beliefs, values, and existential experiences, be they religious or not. However, these aspects are not systematically and regularly determined and integrated into the care of patients with hematological cancer. To describe the perception of spirituality among patients with newly diagnosed hematological malignancies and their loved ones. This qualitative descriptive study employed semi-structured individual interviews with patients and their loved ones and the completion of three questionnaires concerning spiritual well-being, quality of life and symptom burden. A total of 10 patients and six family members were included in our study. Three types of spirituality emerged from the interviews: religious, connecting, and non-religious spirituality. These perceptions are part of the backdrop of this disease whose sudden onset requires the mobilization of resources such as family support, coping strategies, resilience, and hope. Beyond the physical consequences, hematological malignancies induce profound changes in patients and their loved-ones regarding their values and beliefs. Encouraging moments of self-expression such as addressing notions of spirituality and supporting patients in their personal cultural practices are important supportive measures that nurses can adopt into their practice.