Abstract
Abstract Objectives : to identify the perceptions of family caregivers regarding the changes that occurred in the family after an elderly relative received a diagnosis of dementia, measuring the changes in the level of burden and analyzing the discourse of such caregivers. Method : the research was conducted through an interview and sociodemographic questionnaire, in addition to the application of a scale that measures caregiver burden, the Zarit Burden Interview. These procedures were applied in two stages, in the multidisciplinary reception of a geriatric clinic, and after three months of care. For the qualitative analysis, the IRaMuTeQ software was used, where, in the first stage, the results were as follows: in the Descending Hierarchical Classification (DHC) four classes were identified: Time (25.00%), Knowledge (33.00%), Consequences and Causes (19.40%); In the Word Cloud (WC), the word ‘No” prevailed. In the second stage, DHC presented six classes, Current Time (13.70%), General Causes (15.70%), Future Time (13.70%), Actions (17.60%), Consequences (23.50%) and Immediate Causes (15.70%). The WC continued to refer most frequently to the word ‘No’. For quantitative analyzes, the SPSS software was used. Results : in most cases, the profile of caregivers was women (75.00%), wives (62.00%), primary caregivers (87.50%), and the elderly (60-75 years). The assessment of burden was moderate to severe (75.00%). Conclusion : caring for a relative with a diagnosis of dementia has direct implications for family caregivers, especially family caregivers facing the aging process. The demands of caring modify the family routine and greatly increase the burden of caregivers.
Highlights
According to Ministry of Health Ordinance no. 2,528 (2006) which approved the National PolicyA high prevalence of chronic diseases is inherent on the Health of the Elderly Person (PNSPI) and to the elderly population is
Significant differences in the measurements of the Zarit Scale between the reception and post-reception phases were not found, the data of the present study revealed the presence of burden in 75.00% of the relatives
The results observed in this study are very similar to previous studies, such as that by Enrique Ramon,[22] which found that the daily care of a family member with dementia generates changes in the family, as well as burdening the main caregiver, who is usually a daughter or a wife
Summary
A high prevalence of chronic diseases is inherent on the Health of the Elderly Person (PNSPI) and to the elderly population is. One example of these revoked Ordinance no. Major neurocognitive disorder is a clinical syndrome, which includes the deterioration of the cognitive domains, behavioral changes and impairment in one or more of the following areas: attention; executive functioning; learning and memory; language; motor perception; social cognition. It interferes with social and occupational functioning. This situation inevitably results in a reliance on care, and requires caregivers
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