Abstract
Aim: To provide the gastrointestinal stromal tumor patient's perspective on side effects of tyrosine kinase inhibitors and compare this with that of healthcare professionals. Materials & methods: Semi-structured interviews were conducted with 19 patients with an advanced or metastatic gastrointestinal stromal tumor, as well as six healthcare professionals, and five patientsparticipated in a focus group. Thematic analysis was used to interpret the data. Results: Most participants (n=29) reported gastrointestinal symptoms followed by tiredness (n=25), edema (n=22), muscle cramps (n=21), skin problems (n=21), eye problems (n=11) and trouble sleeping (n=10). Patients, but not healthcare professionals, reported cognitive problems or symptoms of depression. Conclusion: These results underline the importance of including the patient's perspective, as there is a gap in symptom reporting between patients and healthcare professionals.
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