Abstract
ObjectiveTo evaluate reliability and validity of the six and 12 item Patient Engagement Evaluation Tool (PEET) to inform guideline developers about the quality of patient and public involvement activities. Study Design and SettingPEET-12 and three embedded validation questions were completed by patients and members of the public who participated in developing 10 guidelines between 2018 and 2020. Confirmatory factor analysis (CFA) was used to assess the validity of a single-dimension factor structure. Cronbach's alpha and Pearson correlations were calculated for internal consistency reliability. Concurrent validation was used to test the construct validity. ResultsA total of 290 participants completed the PEET-12. To improve tool efficiency, based on results indicating redundancy from initial item analysis and experts' review, six of 12 items were included in the final tool (PEET-6). For the PEET-6, CFA supported the single-factor structure (χ2(15) = 5173.4, P < 0.001, Tucker-Lewis Index = 1.00, Comparative Fit Index = 0.99, Root Mean Square Error of Approximation = 0.08). Correlation between the total score for the 3 validation questions and the PEET-6 total score was 0.71, 95% CI [0.65, 0.77], supporting construct validity. ConclusionPEET-6 and 12 are valid tools to measure patient and public involvement within settings of clinical practice guideline development.
Highlights
To improve tool efficiency, based on results indicating redundancy from initial item analysis and experts’ review, six of 12 items were included in the final tool (PEET-6)
Meaningful patient and public involvement (PPI) in guideline development is an ethical imperative for developing trustworthy guidance
Guidelines developed with patient involvement are more likely to address patient preferences, provide recommendations that are better tailored to individual needs, and better support clinical decision making, when practitioners perceive incongruency between patient preference and the guideline recommendations [4,5]
Summary
Meaningful patient and public involvement (PPI) in guideline development is an ethical imperative for developing trustworthy guidance. Guideline developers worldwide, including the Canadian Task Force on Preventive Health Care (CTFPHC) [6], United States Preventive Services Task Force [7], Scottish Intercollegiate Guidelines Network [8], and National Institute for Health and Care Excellence [9], undertake strategies to involve patients and the public in guideline development Some criticized such strategies as tokenistic in some cases and potentially contributing to inequity in guideline recommendations [10,11], emphasizing the need for guideline developers to evaluate the quality of their engagement activities [12]. PEET was applied to evaluate knowledge user engagement during the development of a systematic review of geriatrician-led models of care [12] and during guideline development by the CTFPHC [7], which produces clinical practice guidelines on primary preventive health care. The objectives of this project were to evaluate the reliability and validity of the PEET and to determine if it could be shortened without substantively changing measurement characteristics
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