The Need to Build Trust: A Perspective on Disparities in Genetic Testing

Abstract

Genetic Testing and Molecular BiomarkersVol. 17, No. 9 PerspectiveThe Need to Build Trust: A Perspective on Disparities in Genetic TestingKalyn Saulsberry and Sharon F. TerryKalyn SaulsberryHarvard College, Cambridge, Massachusetts.Genetic Alliance, Washington, District of Columbia.Search for more papers by this author and Sharon F. TerryGenetic Alliance, Washington, District of Columbia.Search for more papers by this authorPublished Online:3 Sep 2013https://doi.org/10.1089/gtmb.2013.1548AboutSectionsView articleView Full TextPDF/EPUB ToolsPermissionsDownload CitationsTrack CitationsAdd to favorites Back To Publication ShareShare onFacebookTwitterLinked InRedditEmail View article"The Need to Build Trust: A Perspective on Disparities in Genetic Testing." , 17(9), pp. 647–648FiguresReferencesRelatedDetailsCited byBeliefs and willingness towards participating in genetic testing for depression in low-income and racial/ethnic minority mothers at-riskArchives of Psychiatric Nursing, Vol. 41Disparities in cancer genetics care by race/ethnicity among pan‐cancer patients with pathogenic germline variants30 August 2022 | Cancer, Vol. 128, No. 21Whole-exome Sequencing of Nigerian Prostate Tumors from the Prostate Cancer Transatlantic Consortium (CaPTC) Reveals DNA Repair Genes Associated with African AncestryCancer Research Communications, Vol. 2, No. 9Disparities in germline testing among racial minorities with prostate cancer13 November 2021 | Prostate Cancer and Prostatic Diseases, Vol. 25, No. 3Germline alterations among Hispanic men with prostate cancer28 February 2022 | Prostate Cancer and Prostatic Diseases, Vol. 25, No. 3Impact of Health Perception and Knowledge on Genetic Testing Decisions Using the Health Belief ModelJCO Clinical Cancer Informatics, Vol. 101, No. 6Knowledge and perceptions of the genetic counseling profession among a national cross‐sectional sample of U.S. adults20 July 2021 | Journal of Genetic Counseling, Vol. 31, No. 1Disparities in Genetic Testing for Heritable Solid-Tumor MalignanciesSurgical Oncology Clinics of North America, Vol. 31, No. 1Operationalizing Genetic Testing in the Care of Patients with Prostate Cancer28 January 2022“It didn’t mean anything” – moving within a landscape of knowledge to interpret genetics and genetic test results within familial cancer concerns1 December 2021 | New Genetics and Society, Vol. 40, No. 4Pursuing genetic testing for children with autism spectrum disorders: What do parents think?28 September 2020 | Journal of Genetic Counseling, Vol. 30, No. 2Use of Diagnostic Testing and Intervention for Sensorineural Hearing Loss in US Children From 2008 to 2018JAMA Otolaryngology–Head & Neck Surgery, Vol. 147, No. 3Massively Parallel Sequencing for Rare Genetic Disorders: Potential and Pitfalls19 February 2021 | Frontiers in Endocrinology, Vol. 11Uncovering social structures and informational prejudices to reduce inequity in delivery and uptake of new molecular technologies7 January 2020 | Journal of Medical Ethics, Vol. 46, No. 11Ethnic disparities among men with prostate cancer undergoing germline testingUrologic Oncology: Seminars and Original Investigations, Vol. 38, No. 3Inclusion of Indigenous Australians in biobanks: a step to reducing inequity in health care3 June 2019 | Medical Journal of Australia, Vol. 211, No. 1The Changing Role of the Genetic Counsellor in the Genomics Era2 May 2019 | Current Genetic Medicine Reports, Vol. 7, No. 2Black and Minority Ethnic women's decision-making for risk reduction strategies after BRCA testing: Use of context and knowledgeEuropean Journal of Medical Genetics, Vol. 62, No. 5Privacy and ethical challenges in next-generation sequencing8 April 2019 | Expert Review of Precision Medicine and Drug Development, Vol. 4, No. 2Precision Medicine: Familiarity, Perceived Health Drivers, and Genetic Testing Considerations Across Health Literacy Levels in a Diverse Sample14 December 2018 | Journal of Genetic Counseling, Vol. 28, No. 1Physician Communication of Genomic Results in a Diagnostic Odyssey Case Series1 January 2019 | Pediatrics, Vol. 143, No. Supplement_1Towards Cultural Competence in the Genomic Age: a Review of Current Health Care Provider Educational Trainings and Interventions26 September 2018 | Current Genetic Medicine Reports, Vol. 6, No. 4Impacts of variants of uncertain significance on parental perceptions of children after prenatal chromosome microarray testing24 July 2018 | Prenatal Diagnosis, Vol. 38, No. 10Genetic counseling among minority populations in the era of precision medicine25 March 2018 | American Journal of Medical Genetics Part C: Seminars in Medical Genetics, Vol. 178, No. 1The Spectrum of Caregiving in Palliative Care for Serious, Advanced, Rare Diseases: Key Issues and Research Directions23 June 2016 | Journal of Palliative Medicine, Vol. 19, No. 7Disparities in Cancer Genetic Risk Assessment and Testing1 July 2016 | Oncology Nursing Forum, Vol. 43, No. 4 Volume 17Issue 9Sep 2013 InformationCopyright 2013, Mary Ann Liebert, Inc.To cite this article:Kalyn Saulsberry and Sharon F. Terry.The Need to Build Trust: A Perspective on Disparities in Genetic Testing.Genetic Testing and Molecular Biomarkers.Sep 2013.647-648.http://doi.org/10.1089/gtmb.2013.1548Published in Volume: 17 Issue 9: September 3, 2013PDF download