The need for antidepressant withdrawal support services: Recommendations from 708 patients

Abstract

Approximately half of the tens of millions of people currently taking antidepressants will experience withdrawal symptoms when they try to reduce or come off them. Nearly half of these describe their symptoms as severe in surveys. Many prescribing doctors seem ill-informed and unprepared to provide effective discontinuation advice and support, often misdiagnosing withdrawal as a relapse of depression or anxiety. 708 members of online support groups for people on antidepressants, from 31 countries, completed a sentence in an online survey: 'A public health service to help people come off antidepressants should include ................'. Two independent researchers categorised their responses into themes, and then reached consensus via discussion. Seven themes emerged: ‘Prescriber Role’, ‘Information’, ‘Other Supports/Services’, ‘Strong Negative Feelings re Doctors/Services etc.’, Informed Consent When Prescribed’, ‘Drug Companies’ and: ‘Public Health Campaign’. The most frequently mentioned requirements of the Prescriber Role were that prescribers be properly informed, provide small doses/liquid/tapering strips, develop a withdrawal plan and believe patients about their withdrawal experiences. The most frequently recommended other services were psychotherapy/counselling, support groups, patient led/informed services, nutrition advice, 24-hour crisis support and ‘holistic/lifestyle’ approaches. Many respondents were angry about how uninformed their doctors were and how they had been treated.