Abstract
<strong>Background:</strong> Maintaining collaborative research relations is challenging, as shown by a range of personal accounts of researchers with experiential expertise, emerging from reflected lived experiences within medical or social care institutions. <strong>Objective:</strong> In contrast, there is a shortage of narratives of researchers without experiential expertise, rendering their specific perspectives largely unaccounted for – a gap that is addressed in this paper. <strong>Methods:</strong> The interpretative method of “interactive interviewing” is used to systematically reflect on how two researchers without experiential expertise perceived personal and emotional unsettlement in collaborative projects in the fields of Mental Health (MH) and Intellectual and Developmental Disability (IDD). <strong>Results:</strong> Four cases are presented to illustrate and advocate the value of <em>unsettling encounters</em> in collaborative research. Underlying is the ethical and methodological position that collaborative research is primarily characterized by its potential to unsettle the relations between the people and parties involved. This position derives from the critical autobiography of the disability studies scholar Kathryn Church, and contrasts to the widely held assumption that collaborative research is largely characterized by a set of distinct methods or techniques. <strong>Discussion:</strong> Some of the epistemic and methodological gains and challenges of approaching collaborative research as a means to facilitate and reflect on <em>unsettling encounters</em> are presented and discussed in relation to overarching theoretical and normative-ethical arguments. <strong>Community Contribution:</strong> This paper purposefully lacks any form of involvement, explicitly focussing on the perspectives and experiences of researchers without experiential expertise in the context of collaborative research relationships.
Highlights
In international research policies, there is increasing emphasis on the need for health service users to become active contributors within processes of academic knowledge production (Barnes, 1996; 2003; Nierse & Abma, 2011; Woelders, 2020; Wright & Kongats, 2019)
Our interactive interviewing process resulted in presenting four cases to illustrate what we mean by unsettling encounters in the context of collaborative research
Instead of aiming at exhaustively covering all potentially relevant aspects of collaborative research partnerships, they intend to exemplify how engaging in this kind of research in the fields of mental health (MH) and intellectual and developmental disability (IDD) may thoroughly invite personal and emotional engagement of researchers without experiential expertise – a phenomenon hitherto hardly discussed within research literature
Summary
There is increasing emphasis on the need for health service users to become active contributors within processes of academic knowledge production (Barnes, 1996; 2003; Nierse & Abma, 2011; Woelders, 2020; Wright & Kongats, 2019). Maintaining collaborative research relations is challenging, as their partners usually vary considerably in terms of experiences, resources, knowledge, perspectives, privileges, power and positions (Embregts et al, 2018; Nind, 2017; Russo & Beresford, 2014; Woelders, 2020) Maybe this is why a slowly growing number of rather personal, highly interesting accounts on challenging collaborative research relations emerged during the past decade (Bos & Kal, 2016; Broznan, 2019; Carr, 2019; King & Gillard, 2019; Nind, 2017; Sandvoort, 2017; Sergeant & Sandvoort, 2019; Van der Lans, 2019), stemming from various disciplinary fields, and at times using grey literature as publication formats. Maintaining collaborative research relations is challenging, as shown by a range of personal accounts of researchers with experiential expertise, emerging from reflected lived experiences within medical or social care institutions
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