Abstract

Background: Rett syndrome is a severe neurodevelopmental disorder occurring in females. Assessment of physical function in this population often pertains to the capacity to perform specific complex and gross motor skills. However, there is increasing interest in measures that evaluate performance of physical function during daily life, such as the number of steps taken each day. Earlier work has found that the Stepwatch Activity Monitor (SAM) accurately quantifies the number of steps taken by females with Rett syndrome. The SAM however, is expensive and the researcher requires technical expertise to operate the software, which may limit its use. The usefulness of subjective proxy-report measures of walking activity in this population is not known. A valid subjective method of assessing walking activity would provide a cheaper and more convenient alternative to the SAM in estimating daily steps.

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