Abstract

Research addressing perceptions of housing in people with Parkinson's disease (PD) is rare, and existing instruments capturing perceived aspects of housing are rarely used. Perceived housing comprises of several domains and is associated with health in general older populations. One such domain is meaning of home, captured by the Meaning of Home Questionnaire (MOH). The aim of this study was to evaluate psychometric properties of the MOH among people with PD. The MOH was administrated to 245 participants with PD (mean age = 69.9 years; mean PD duration = 9.7 years). The instrument consisted of four sub-scales with 28 items, each with 11 response options (strongly disagree = 0; strongly agree = 10). We evaluated data quality, structural validity (factor analysis), construct validity (i.e., testing correlations with relevant constructs according to pre-defined hypotheses), corrected item total correlations, floor and ceiling effects and internal consistency. The data quality was high (0-1.2% missing data). The exploratory factor analysis suggested removal of five items and revealed three new factors; "My home is my castle", "My home is my prison" and "My home is my social hub". The 23-item MOH showed statistically significant correlations with life satisfaction, usability and ADL dependence, while not correlated with number of environmental barriers. These findings were largely as hypothesised, thus supporting construct validity (both convergent and discriminant). The corrected item total correlations were >0.3 for all items and the internal consistency was >0.70 for all sub-scales. No floor or ceiling effects were reported except for the sub-scale "My home is my castle" (ceiling effect = 15.6%). The 23-item MOH version with three new sub-scales is sufficiently reliable and valid for use in PD populations. This paves the way for further research of meaning of home among people with PD, using the 23-item MOH version.

Highlights

  • When using data collection instruments in research and clinical settings, it is essential that they are psychometrically sound

  • The 23-item Meaning of Home Questionnaire (MOH) version with three new sub-scales is sufficiently reliable and valid for use in Parkinsons disease (PD) populations. This paves the way for further research of meaning of home among people with PD, using the 23-item MOH version

  • In order to identify whether the MOH validly and reliably captures meaning of home among people with PD, this study aimed to evaluate the following psychometric properties of the instrument: data quality, structural validity, construct validity, corrected item total correlations, floor and ceiling effects and internal consistency reliability

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Summary

Introduction

When using data collection instruments in research and clinical settings, it is essential that they are psychometrically sound. The Meaning of Home Questionnaire (MOH) captures perceived aspects of housing. This instrument has been psychometrically evaluated for research on housing and health along the process of ageing among community-dwelling older people, but not in diagnose-specific populations such as people with Parkinsons disease (PD). Research addressing perceptions of housing in people with Parkinson’s disease (PD) is rare, and existing instruments capturing perceived aspects of housing are rarely used. Perceived housing comprises of several domains and is associated with health in general older populations. One such domain is meaning of home, captured by the Meaning of Home Questionnaire (MOH).

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