Abstract
Family grief and anxiety following a chronic and complex illness is common. No one wants to be the person who doesn’t respond to care or the family that failed to fix things. With chronic illness a partner loses their beloved partner one sick day at a time. This response is from a physician and husband whose beloved wife sustains intractable migraine pain and is tormented with guilt over having her role as a wife and mother usurped by the enemy of pain. The agony infiltrates the family structure. Her husband shares the pain of a dispassionate hospital system that is equipped to manage cases but not meet the needs of the desperate and vulnerable persons who must enter emergency room doors. In this response the author shares ideas for change. People’s ability to deliver compassion is limited by distance and fragmented knowledge yet the author cheers this family on in their quest for recovery.
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