The Impact of Tourette’s Syndrome in the School and the Family: Perspectives from Three Stakeholder Groups

Abstract

This article analyzes the perceptions of Spanish health professionals, children with Tourette’s Syndrome (TS) and their parents about social, school and family problems related to the disorder. A qualitative research methodology was used involving Focus Groups (FGs) made up of children with TS (× 2 FGs), parents/caregivers of persons with TS (× 2 FGs) and health professionals (× 1 FG). The study highlights many of the principal areas of concern for persons with TS, parents/caregivers and health professionals that directly and indirectly add to the burden of living with the disorder. The results of the study point out that the stigma and social maladjustment in children with TS is caused in large part by a misunderstanding of the disorder by teachers and peers. Parents of children with TS especially emphasize tics, considering them to be the main cause of social maladaptation. The results suggest that interventions among parents, teachers and peers should be implemented towards a greater understanding of the disorder and its symptoms.