Abstract
BackgroundFor people who have a mobility impairment, access to an appropriate wheelchair is an important step towards social inclusion and participation. The World Health Organization Guidelines for the Provision of Manual Wheelchairs in Less Resourced Settings emphasize the eight critical steps for appropriate wheelchair services, which include: referral, assessment, prescription, funding and ordering, product preparation,fitting and adjusting, user training, and follow-up and maintenance/repairs. The purpose of this study was to investigate how the provision of wheelchairs according to the World Health Organization’s service provision process by United Cerebral Palsy Wheels for Humanity in Indonesia affects wheelchair recipients compared to wait-listed controls.MethodsThis study used a convenience sample (N = 344) of Children, Children with proxies, Adults, and Adults with proxies who were on a waiting list to receive a wheelchair as well as those who received one. Interviews were conducted at baseline and a 6 month follow-up to collect the following data: Demographics and wheelchair use questions, the World Health Organization Quality of Life-BREF, Functional Mobility Assessment, Craig Handicap Assessment Recording Technique Short Form. The Wheelchair Assessment Checklist and Wheelchair Skills Test Questionnaire were administered at follow up only.Results167 participants were on the waiting list and 142 received a wheelchair. Physical health domain in the World Health Organization Quality of Life-BREF improved significantly for women who received a wheelchair (p = 0.044) and environmental health improved significantly for women and men who received a wheelchair as compared to those on the waiting list (p < 0.017). Satisfaction with the mobility device improved significantly for Adults with proxies and Children with proxies as compared to the waiting list (p < 0.022). Only 11 % of Adults who received a wheelchair reported being able to perform a “wheelie”. The condition of Roughrider wheelchairs was significantly better than the condition of kids wheelchairs for Children with proxies as measured by the Wheelchair Assessment Checklist (p = 0.019).ConclusionsWheelchair provision according to World Health Organization’s 8-Steps in a less-resourced setting has a range of positive outcomes including increased satisfaction with the mobility device and better quality of life. Wheelchair provision service could be improved by providing more hours of wheelchair skills training. There is a need for outcome measures that are validated across cultures and languages.
Highlights
For people who have a mobility impairment, access to an appropriate wheelchair is an important step towards social inclusion and participation
Wheelchair provision service could be improved by providing more hours of wheelchair skills training
There is a need for outcome measures that are validated across cultures and languages
Summary
For people who have a mobility impairment, access to an appropriate wheelchair is an important step towards social inclusion and participation. In the early 2000’s large charitable organizations started mass-distributing wheelchairs [18] This method of provision can reach many people in a relatively short period of time, the donations often do not meet criteria which ensure that each wheelchair will be more helpful to the user than harmful [19, 20]. Many of the donations consist of hospital-style wheelchairs designed for temporary use in institutional settings which do not meet international durability standards [21,22,23,24] These wheelchairs often lack adjustability, are frequently provided without cushions, and typically do not meet the functional needs of users [22,23,24,25].
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